I am a mom. I happen to have autoimmune disease for decades, but only knew it was autoimmune when it became life destroying and it decimated me. It reared it’s ugly head while was pregnant. Though I still didn’t;t now I had autoimmune then. Though it was o the table as a possibility.
I have severe Graves’ disease and others still undiagnosed. It has flipped my life upside down and kicked me when I was down and at my worst.
It caused me to lose everything. I learned who were my true allies and who were my frienemies. I even had to regain my strength enough to relearn to walk again after graves gave me a massive blood clotting event throwing at me a long recovery from massive embolectomy.
If that wasn’t enough, it has harmed my vision and damaged my optic nerves, leaving me visually impaired. They say permanently.
There goes my photography…
I went through much of it alone in a nation I do not call home with my best friends and help far from me. My son and I struggled through it. Oh it was a struggle bu more because of doctors. Sound familiar?
I also learned much about narcissists and clearly under the circumstances had much time to learn about them.
So of course I will share with all my readers.
I am not a lawyer, I am not a doctor, not a nurse, But I have tons of experience of both good and bad. And plenty of time suffering like many of my readers with health and cleaning my life f the things and people that don’t belong. Like an eternal spring cleaning.
Hindsight showed me those narcissists in my life which made so much sense of their nonsense and mayhem I averted by chance many times.
Although, I had narcissist claws digging in as I was headed into my incredibly difficult pregnancy and what would be a terrible flare with no help from medical community. I managed to pull through it and I managed to keep my baby through many unnecessary medical crisis’s. And of course family was right there to join in the problems and create misery.
What else is family for but to harm you and complain when you get sick visiting? I was left undiagnosed by doctors who thought I was faking it. Like so many before me. And I assume so many after me. Maybe like many who will come across my site because they are also seeking answers to their nonsensical health.
My child because of it I’m sure, has a neurological disorder. Tourette’s.
I’m glad to say that we actually find much to laugh about and always find a reason to laugh. No matter how bad thins get. He is also quite the child and a blessing because he understands as well as a child can when I am down for the count.
Sometimes I’m hysterically laughing at how bizarre this has turned out. And of course we both have a hysterical sense of humor! I have to say, I have not given up. And our laughter I am sure is what has kept me afloat and kept me going.
Does that make me an optimist or a sucker for punishment? I’ll say a realist with hope!
You bet I’ve had the gamut of emotions that most autoimmune patients feel when feeling abandoned by those who just don’t understand nor have empathy.
I never lost my faith. Though like Job, I argued with God. But have to say I’ve learned so much. I’m a quick learner, I’m sure I could have learned other ways. I still have that argument!
And now I decided to turn it around and use it for good. I hope it helps someone else get through theirs so they too can see the light at the end of the tunnel. Light that is not an on coming train!
I hope my journey and all I’ve learned can help others who also feel abandoned in such a dire situation get through their struggle. And hopefully avoid some of the same disasters. And protect themselves from wolves in white lab coats.
I also hope things I have found quite by chance along the way that helped me and gave me more hope than doctors it seems can help you too,
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